What am I waiting for with much delight, but the sign of
UPS truck on finally cold Texas December night, I am hoping that a packaged wrapped with care, of a no longer made Dinoco Helicopter will soon be here. I check the website and the tracking number to see that Santa's helper will be here on the 20th by the eve. so now I will take my leave and in part I say, Merry Christmas to all, and to all a good night.
Yeah I think I butchered that pretty good, and you people got your money's worth. Yes Binky's only request this year is a blue Dinoco helicopter from the first Cars movie. He told us it was at the Disney store but when we went they were gone, and what to do, go to Amazon and pay, but alas I was able to use a $50 credit and it only cost me 1.94, so thank goodness for small breaks.
Speaking of breaks the car of ours was doing some major funny things, I leave that to hubby to deal with but, because it is our only car, hubby has to rent a car for the week, and he took Binky to the car rental office so they could go straight to Binky school afterwards, and Binky waited very nice in the office. No meltdowns or any other bad behaviors, ABA waiting trials really work people!
For you Inky fans' it has been suggested that I write a book on the antics of Inky, It will be using the same model as Marley and me. Inky it is a good thing you are so cute and lovable, because you make your mommy earn her early bedtime.
Inky antics include, hiding a pumpkin in the house that it took us two hours to find, it was in his toy chest. That would have been fun to find in a week.
Throwing paper towel rolls over the banister and hanging on to them at the top of the stair, my house looked like it was involved in a prank. my personal favorite Inky smells like a field of flowers now, because yesterday as I am cleaning up the bathroom, Inky comes in and has taken off his clothes and grabbed the bottle of bubble bath, I didn't know he could twist off caps, and he proceeded to pour bubble bath all over himself. so he got a very nice bubble bath in my bath tub. I was even kind enough to get his bath toys for him. he then got out of the tub and ran naked through the upstairs to avoid hubby drying him off. Yes, a 4yr old got the best of two adults. now what to call the book, Inky and me , the life of Inky! that darn Inky! or Inky: the musical!
I can't leave Binky out of crazy antics, a package came and I thought it was something from a family friend, which I let Binky and Inky have those early. but no it was the gift from Grandma, a Flo's Gas Cafe from the first cars, I open the package and quickly saw what it was and taped it back and then I had to leave the box to deal with Inky, my mistake, Binky open the box back up and brought the whole box upstairs and open the package and I didn't even know he could open it and he asked me to put it together which at that point the mystic is gone so I did and Thanks Grandma! they love the gift. Little silly boys!
Looking very forward to the break, Binky gets tired you can see it. When we ran out of Speech and OT hours he was behaving better but you could see he is more tired, I went ahead and made a decision to cancel all therapies and for the break. We are going to relax as a family and play with toys and make some Christmas crafts,( we have already started and Binky has been very open to trying a little, he colored a wooden ornament of a penguin red, he told me "the penguin is hot.") I really love it! I am thinking about making hubby's work some of my sugar cookies but if I don't maybe I will make them family.
Its been a long year so thanks for listening so far to my voice, I am just starting to find it. Be patient with the break, breaks are good and bad for our kids. Go have some fun! and Happy Holiday from our family to yours.
This is about the wondeful adventures of Binky who has Autism and Inky who is his younger brother and mortal enemy and best friend. We happily live with Autism but we are not always happy. This life is a struggle and a blessing. I hope you will share in our adventure.
Wednesday, December 19, 2012
Monday, November 26, 2012
In need of another vacation
All and All Thanksgiving vacation was wonderful, Inky and Binky played with their toys and messed up the house and there was so much laughter, I would just start laughing. Binky for the first few days was down right lethargic, I was concerned he might be sick but he bounced right back for the Thanksgiving. He was very excited about Grandma and PaPa coming into town, and I thought we were going to have a full blown tantrum over not serving Thanksgiving on Wed, but we got Binky to understand that Thanksgiving was on Thursday. We watched Charlie Brown's Thanksgiving over and over again. Binky ate turkey and stuffing, and some pumpkin bread which I called pumpkin cake. Inky ate for the first time fruit salad,and later that night had gas so bad I had to do those baby bicycle moves to get the gas out. Binky was upset tonight because we had to return to reality and do some homework, this is the first time, he didn't say "no new school when he woke up" he loved being home and we even cancelled his therapies for the week. I'm thinking that maybe we need to shut things down for a while and get some rest. Only 4 more weeks until winter break.
Sunday, November 18, 2012
Short but sweet.
They say that people with Autism need consistency in their lives, and when there are changes to be supportive. In real terms, you need to do the same thing everyday and if something is going to change you must prepare for all hell to break loose. I am making this a short and sweet post, because the grandparents are coming into town, and I have to make a Thanksgiving dinner(oh that's not a complaint, I love to cook, it is hard to do with two little kiddos running around) but this week I will have three people to help me wrangle the little cute monsters, its not enough but the national guard was busy this weekend. I am so tired, I have done more loads of laundry then I care to count, every room has been clean and re clean, and things that were clean are now dirty again, but I am making progress, the last room is the living room, or as I call it the PLAYROOM (cue ominous music) Yes, the playroom, where toys are not taken out of their boxes, NO they're dumped out and throw about and taken to different room, and then just left there, I try to keep it from getting too bad but I swear Inky and Binky just look at me with a yeah right lady I don't know what you have been smoking but I am going to go over here now. Binky is not really the problem, he puts his stuff back and helps in ways that work for him, Inky is the trouble, I never got to experience this before with Binky so this is what 3 almost 4 is like, he reminds of the Caterpillar room in Toy Story 3, Inky plays with his toys long and hard. I am sure at the end of the night as I am laying in my bed too tired to even move, the toys are down stairs checking to make sure everyone has survived the day.
This is going to be a good week, every week I hear NO new school, no new school, and this week no school, he is going to get some much needed rest, I think he is starting to get burned out, he has been showing all the signs but our hours for Speech and OT are almost out and we are going to do an increase in hours after the new year for ABA, so this will be a nice few months for Binky to relax and watch his Ipod and make some fun crafts. The meds are working again with a little bit of tweaking and it seems to be going good. Inky's meds are working too, he even likes to take them so its nice.
Well this is longer than I expected but if you ever meet me, I love to talk, that's because I hang around little kids all day and I would like to talk about something else, than Play doh, ipod, pink panther, and Disney Channel.
I wish you all out there A Happy Thanksgiving. or as Binky would say Happy Turkey Day.
This is going to be a good week, every week I hear NO new school, no new school, and this week no school, he is going to get some much needed rest, I think he is starting to get burned out, he has been showing all the signs but our hours for Speech and OT are almost out and we are going to do an increase in hours after the new year for ABA, so this will be a nice few months for Binky to relax and watch his Ipod and make some fun crafts. The meds are working again with a little bit of tweaking and it seems to be going good. Inky's meds are working too, he even likes to take them so its nice.
Well this is longer than I expected but if you ever meet me, I love to talk, that's because I hang around little kids all day and I would like to talk about something else, than Play doh, ipod, pink panther, and Disney Channel.
I wish you all out there A Happy Thanksgiving. or as Binky would say Happy Turkey Day.
Sunday, November 11, 2012
Dr. Good Update.
Well, it was time for Binky's checkup with Dr. Good. We are on Triliptal, and trazadone, and another which I can't spell right now. For the last two months it has been working really great, but the last week, Binky has started to wake up early and he has been taking longer to go to sleep. What Dr good calls sleep latency. We were having some issues, with tantrums, the nice thing about having regular ABA sessions is you can tell the difference between behavior or if it is something else that needs meds for. We give Binky the Triliptal in the morning and at bedtime, but at 3pm after school he started having mega tantrums, I was doing everything I was supposed to with the ABA side but I was having major trouble. Nothing was making Binky happy and then he would be OK in a few hours but from 3-5pm nightmare. Then we would give him his evening meds and he would go off to sleep. I love Dr. Good, he listen to all the problems we are having and he doesn't blame me, he believes me. He is going to do a small increase in Binky's Triliptal but he is going to give Binky some at 3pm and it has been great, I gave Binky a dose when he was grumpy at 4pm after the Dr. Good appointment. Binky wanted a hamburger and dinner wasn't until an hour later, Hubby and I had a date night that same night, one shot, of Binky's triliptal and Binky was nice again. We left him at our monthly babysitter service and Binky was great, he told us good bye and to have fun.
Hubby and I celebrated our 9th wedding anniversary. We have been together for 11 years, and this man drives me crazy but I just love him, I mean true love, the kind that you just can't live without. I know we are meant to be together forever. We were supposed to have a nice planned out date. HAHAHAHA YEAH RIGHT! what dope are you smoking. Plans are for people who don't have kids or autism in their life. We just went to Saltgrass steakhouse, and I got to eat a very large steak which is my favorite we also ordered a cake that we are still working on, it is the size of a small tugboat.
and Finally, I would like to introduce you all to Dr. Good's newest patient: INKY! Yes, Inky is about to turn 4 and he still stays up all night, it doesn't matter what time he goes to bed, or gets up he still stays up until 1am, in the process he destroys his room. so after our appointment with Dr Good, I asked what age do I need to worry about Inky. Dr Good, asked all the questions, about how Inky sleeps, and what we have done to try to get inky to sleep. but alas nothing as worked. So then he said Yes, I need to start seeing Inky and gave us Clondine, which was the first drug we started on with Binky, but with Inky he just goes to sleep. and he wakes up happy in the morning and it is a great. The last two night Inky has been asleep by 9:30pm.
Hubby and I celebrated our 9th wedding anniversary. We have been together for 11 years, and this man drives me crazy but I just love him, I mean true love, the kind that you just can't live without. I know we are meant to be together forever. We were supposed to have a nice planned out date. HAHAHAHA YEAH RIGHT! what dope are you smoking. Plans are for people who don't have kids or autism in their life. We just went to Saltgrass steakhouse, and I got to eat a very large steak which is my favorite we also ordered a cake that we are still working on, it is the size of a small tugboat.
and Finally, I would like to introduce you all to Dr. Good's newest patient: INKY! Yes, Inky is about to turn 4 and he still stays up all night, it doesn't matter what time he goes to bed, or gets up he still stays up until 1am, in the process he destroys his room. so after our appointment with Dr Good, I asked what age do I need to worry about Inky. Dr Good, asked all the questions, about how Inky sleeps, and what we have done to try to get inky to sleep. but alas nothing as worked. So then he said Yes, I need to start seeing Inky and gave us Clondine, which was the first drug we started on with Binky, but with Inky he just goes to sleep. and he wakes up happy in the morning and it is a great. The last two night Inky has been asleep by 9:30pm.
Saturday, November 3, 2012
30 days of Thankful Inky and Binky Style
I don't have to the time or the energy to do these 30 days of Thankful out there, doesn't mean I am not thankful just means, I had to clean the floor four times today and had three tantrums to deal with.
So here is all my 30 days of Thankful
1. Thankful for my kids grandparents, they are very great to both my husband and children.
2. Thankful for my husband, he loves our boys and me.
3. Thankful for Disney channel, my kids love the shows and Inky is learning things from Disney Junior it is wonderful to see him talking to Mickey.
4. Thankful for my husband's job, he has a good one, and he loves what he does.
5 Thankful for my Autism Support group. MoCAA, It has been a life saver.
6. Thankful for my friends, I have some of the best in the world.
7. Thankful for an Ipod touch, make me and the kids happy.
8. Thankful for our wonderful house, it is warm in winter and cool in the summer.
9. Thankful for Morgan's Wonderland, it is one of the few places Binky can go and be himself
10. thankful for a season pass for Sea World. It's a wonderful place, that Binky comes alive
11. Thankful for my blog a place where I can be myself and express myself
12. Thankful for Binky's ABA, I would be lost without them
13. Thankful for Binky's Speech Therapist, she has been doing such a good job and made wonderful progress with him
14, Thankful for Binky's OT, He has really helped Binky and is always coming up with ideas that take Binky to the next level.
15. Thankful for my very understanding neighbor, she just understand my family and is so patient with my kids.
16. Thankful for fruit snacks, it make Inky so happy.
17. Thankful for coffee, some days its the only thing that keeps me going
18. Thankful for Dr. Good a wonderful Nero that helps Binky sleep 10-12 hrs a day
19. Thankful for Binky's charter school. A Special school for Autism, Binky has everything he needs.
20. Thankful for south Texas weather, we have very few cold days, it is wonderful
21. Thankful for parks, there are so many wonderful parks near my house for the boys to play in
22. Thankful for play doh, the boys fav toy and creates so much fun
23. Thankful for books, I love to read and my boys love to read
24.Thankful for my neighbor's cat, she lets my Inky play with her
25.Thankful for helicopters, Binky comes alive, when he is around them
26.Thankful for my cell phone, it is my lifeline to grown up talk
27.Thankful for bedtime, and a little me time
28.Thankful for date nights, hubby and I need to reconnect more often
29.I am most thankful for these wonderful boys, they make life worth living and bring joy and craziness to my life everyday.
30. I am thankful for Autism, without I would never know how strong my family could become.
So here is all my 30 days of Thankful
1. Thankful for my kids grandparents, they are very great to both my husband and children.
2. Thankful for my husband, he loves our boys and me.
3. Thankful for Disney channel, my kids love the shows and Inky is learning things from Disney Junior it is wonderful to see him talking to Mickey.
4. Thankful for my husband's job, he has a good one, and he loves what he does.
5 Thankful for my Autism Support group. MoCAA, It has been a life saver.
6. Thankful for my friends, I have some of the best in the world.
7. Thankful for an Ipod touch, make me and the kids happy.
8. Thankful for our wonderful house, it is warm in winter and cool in the summer.
9. Thankful for Morgan's Wonderland, it is one of the few places Binky can go and be himself
10. thankful for a season pass for Sea World. It's a wonderful place, that Binky comes alive
11. Thankful for my blog a place where I can be myself and express myself
12. Thankful for Binky's ABA, I would be lost without them
13. Thankful for Binky's Speech Therapist, she has been doing such a good job and made wonderful progress with him
14, Thankful for Binky's OT, He has really helped Binky and is always coming up with ideas that take Binky to the next level.
15. Thankful for my very understanding neighbor, she just understand my family and is so patient with my kids.
16. Thankful for fruit snacks, it make Inky so happy.
17. Thankful for coffee, some days its the only thing that keeps me going
18. Thankful for Dr. Good a wonderful Nero that helps Binky sleep 10-12 hrs a day
19. Thankful for Binky's charter school. A Special school for Autism, Binky has everything he needs.
20. Thankful for south Texas weather, we have very few cold days, it is wonderful
21. Thankful for parks, there are so many wonderful parks near my house for the boys to play in
22. Thankful for play doh, the boys fav toy and creates so much fun
23. Thankful for books, I love to read and my boys love to read
24.Thankful for my neighbor's cat, she lets my Inky play with her
25.Thankful for helicopters, Binky comes alive, when he is around them
26.Thankful for my cell phone, it is my lifeline to grown up talk
27.Thankful for bedtime, and a little me time
28.Thankful for date nights, hubby and I need to reconnect more often
29.I am most thankful for these wonderful boys, they make life worth living and bring joy and craziness to my life everyday.
30. I am thankful for Autism, without I would never know how strong my family could become.
Sunday, October 28, 2012
Sea World
Today was a overall great day, we went to Sea World. It was a lot of fun but a lot of work. There were new sensory issues to deal with in the life of Binky. there was the silly show of Seamore and Clyde and Binky would have no part of it, it was loud and its funny how now, I hear how loud it is. I love loud music and loud things don't bother me. When Binky is around I can hear it and know that this place isn't going to work. so we left. There was a sesame street play area and while Binky never like Sesame Street he loved the play area and wanted me to come along all sorts of different things, I am not in good enough shape for that but what the heck I tried my best. then Binky wanted French fries and chicken nuggets so we stood in line which normally is fine, there were only a few people ahead of us, but Binky would not sit still. and tried to jump ahead of the line to grab the food. Oh and where is Inky? When I told hubby which I think I will now call Rabbit, because that is his name. I told Rabbit that Binky couldn't handle the show, and that we were leaving he thought just Binky and I were leaving, he staying with Inky and they got to see SeaMore and Clyde, I admit I am jealous, but Inky only half watched it. Well I was very proud of myself, I got our food before the huge line and my friend met us and while we had waited in line Binky started eating food right off the line, so I had to buy an extra kid meal because Binky was taking bites of food. Which was fine later because I was able to have food for one of Binky's friends who join us for lunch. His mom loved that she didn't have to wait it line. I had all the food all ready after the show and we had a very nice lunch and Binky was happy because he got some chocolate cake. I tried to go to other show but Binky would have none of it. so we just walked around and went to see the different animals, he loved feed the dolphins or I should say he loved it when I fed the dolphins. He loved how they jumped and would come right up to us for a fish, he was took scared to touch but he was happy to be there. the penguins were our next favorite, he loved how they were flying in the water and when meal time happened the penguins all jumped out of the water and Binky was like "There all wet" I told him they would shake off the water which they did and Binky thought that was great and that the family needed to shake like penguins, so yes there was a family of four shaking like penguins. He was good at gift shops and leaving different areas, When it time to go home, it was Binky who told us. Mama let's go home. so we did and they had a great time.
Friday, October 26, 2012
Back after Illness in the house.
October 6, I got a cold, but being a very active mommy with active kiddos, I couldn't stop until my body made me stop. Yesterday was the first day back after being sick for so long. Now, it is time for the clean up. Hurricane Cold has run through the local residence. Toys everywhere, Dishes everywhere, Laundry everywhere. It amazes me how bad one place can get. Inky and Binky are doing great, they got the cold but they also got their daddy immune system so they were good after about a week. We had a birthday! Binky is now 7yr old. We had a small home party because he was sick. His Grandmas (my mom and my hubby mom) gave Binky some birthday cash. So we went to the local grocery store and Binky picked out a toy, (a large helicopter) he was very excited that he could pick out anything he wanted. Then the sweetest thing, he told me, that Inky needed toys too. so he pick up a five pack of cars. We then went to the bakery and picked out some birthday cupcake and some candles. We then went to Whataburger and got Binky his favorite meal. He loved his new helicopter but I knew he was sick because my very hyper kiddos were laying on the ground playing with the toys and Binky just wanted to lay in bed or on the couch with me. Inky and I love hot tea and we would sit on the couch and drink tea and eat soup. I admit it sucks being sick but when the kiddos are sick they are sooo good. I knew when the illness was over, after a week I was laying in bed and watching television and the kiddos are running around the house playing tag and laughing. Now it is time, to clean up. I promise more to blog about later when I get back to the living.
Saturday, September 29, 2012
Autism proof decor.
When I first got married the walls were covered in frames, and posters and prints, the bookcase had books and the coffee table had magazines. The kitchen had glasses and dishes. There were glass bottles in the fridge. There were pretty toothbrush holders and soap dishes in the bathroom, also fancy towels with pretty designs.
ITS ALL GONE NOW!
What hasn't been broken or torn to shreds, has been packed away in a fashion that would make a refugee's head spin, my usual package to pack stuff up in a hurry, Diaper boxes, my closets look like a display for Huggies.
When you first have children you go into survival mode: Eat, sleep, go to work, pay the bills, run only the things you need errands. throw in a few fun times with friends and hubby and that has been our life for a while, with new diagnosis and Inky's birth, I felt like our survival mode lasted longer than it should.
I am starting to want to do things to my house, but I have a different vision, instead of a living room, I want a sensory room for Binky, I think it would help him stay calm. In the kitchen there is nothing Binky can break so I am able to relax a bit. Last night Binky got mad and swept off things in the kitchen and I didn't flinch, nothing we own now can break. or if it does break I can replace it cheaply.
I want to make Binky's room something nice but also something that wasn't going to blow up in my face if he tore it up in a meltdown, so I did some research and got some ideas and today I went to the store, I got some poster tape and self laminate pages and a great site that lets me legally print pictures of helicopter and BOOM! Hard plastic sheets of paper stuck on a wall with cheap poster tape, and it cost me about $14. for 10 pictures. I put Five up for now, and I am going to wait to see what I will need to do next.
I should rewind and tell you what started this episode of design star started. I wrote to Bell Helicopter and told them about Binky, and his love of Bell Helicopters, I even sent them a picture of Binky with a Bell Helicopter and the Fine people of Bell Helicopter sent us a lovely gift package and in it was a large poster of Binky's favorite helicopter the V-22 Osprey, or as Binky calls it Airplane Helicopter, he says it like you would say "his name is John Smith." It was so nice and I wanted to frame it but frames take time(which I have none) and cost money ( which I have some but I need it for other thing) and in a pile of taken down art work I found a large print, and suddenly I realized it was near the same size as the Osprey poster!
so now this wonderful poster that had been rolled away was out in the open and I wanted to put it in Binky's room and it looked great, but now I realize that at age 7 Binky need a more grown up/kid friendly room. I looked into wall decals and poster which should be in this week and with the addition of the laminated photos, the room is coming together wonderfully, Binky's keeps all of this airplanes and helicopter in his room so they blend right into the decor. I figured out how to have a nice home and still keep Binky safe.
ITS ALL GONE NOW!
What hasn't been broken or torn to shreds, has been packed away in a fashion that would make a refugee's head spin, my usual package to pack stuff up in a hurry, Diaper boxes, my closets look like a display for Huggies.
When you first have children you go into survival mode: Eat, sleep, go to work, pay the bills, run only the things you need errands. throw in a few fun times with friends and hubby and that has been our life for a while, with new diagnosis and Inky's birth, I felt like our survival mode lasted longer than it should.
I am starting to want to do things to my house, but I have a different vision, instead of a living room, I want a sensory room for Binky, I think it would help him stay calm. In the kitchen there is nothing Binky can break so I am able to relax a bit. Last night Binky got mad and swept off things in the kitchen and I didn't flinch, nothing we own now can break. or if it does break I can replace it cheaply.
I want to make Binky's room something nice but also something that wasn't going to blow up in my face if he tore it up in a meltdown, so I did some research and got some ideas and today I went to the store, I got some poster tape and self laminate pages and a great site that lets me legally print pictures of helicopter and BOOM! Hard plastic sheets of paper stuck on a wall with cheap poster tape, and it cost me about $14. for 10 pictures. I put Five up for now, and I am going to wait to see what I will need to do next.
I should rewind and tell you what started this episode of design star started. I wrote to Bell Helicopter and told them about Binky, and his love of Bell Helicopters, I even sent them a picture of Binky with a Bell Helicopter and the Fine people of Bell Helicopter sent us a lovely gift package and in it was a large poster of Binky's favorite helicopter the V-22 Osprey, or as Binky calls it Airplane Helicopter, he says it like you would say "his name is John Smith." It was so nice and I wanted to frame it but frames take time(which I have none) and cost money ( which I have some but I need it for other thing) and in a pile of taken down art work I found a large print, and suddenly I realized it was near the same size as the Osprey poster!
so now this wonderful poster that had been rolled away was out in the open and I wanted to put it in Binky's room and it looked great, but now I realize that at age 7 Binky need a more grown up/kid friendly room. I looked into wall decals and poster which should be in this week and with the addition of the laminated photos, the room is coming together wonderfully, Binky's keeps all of this airplanes and helicopter in his room so they blend right into the decor. I figured out how to have a nice home and still keep Binky safe.
Thursday, September 20, 2012
One down, another one to go.
I finally get Binky to sleep, it is wonderful, the other day he was asleep at 8:30pm and slept all night. Now, Inky is making an appearance at midnight I am not sure why, he is wide-awake and stays up until 2:30-3:30am. He only has two requests milk and corn chips and wants me to watch Disney channel in his chair, I guess that is three but its 2:30am and I am barely awake. I am in a funny position, do I go the same route as I did with Binky, I know that children with Autism have a LOT of problem sleeping and Binky is the KING! Inky, is taking a very nice role and next in line to the throne. I ask again, do I do all the same steps I did with Binky or do I talk to Dr. Good, and just skip ahead? to what I know is probably true, that Inky is going to have the same issues, with sleep but he does not have the Autism. He passed ADOS, so for right now we are saying he does not have Autism. I really need him to go to sleep; it would be nice not to have four cups of very strong coffee just to get through the day. Melatonin was a big fail, I even got some good stuff from Whole Foods. Inky is a pig and eats lots of food. This is the life.
Monday, September 17, 2012
Peace for now.
oh, so hard to keep up with the blog, I slipped on a banana peel and hurt my arm, and had a busy weekend, and now it is Monday, Where does the time go? On Friday, I had to call Dr. Good, Binky was still very anxious and still not going to sleep about 30mins to an hour after taking meds like Dr. Good wanted. I call and tell him it is still the same, even after and increase. I get a call back about a new med, but I didn't know which med it was to replace so I had to call back and come to find out it is in Addition too, so Binky now take three meds to go to sleep. It was quite the feat to get to the store, I had to call a friend, thanks to Binky's medical bills, we only have one car and Binky was going to have his ABA come by and work with Binky on how to get over daddy leaving for work. I get the meds and prep them before going out with some friends, Hubby reported Binky took his meds fine and was asleep shortly after I got home, Inky is still not sleeping but that is for another day. Now it is Monday and Binky is great, if I had the time I would have called the Dr. good and said way to go!( I have an image of a football stadium with a jumbo tron Saying WAY TO GO!) Binky sleeps all throughout the night and goes to sleep 30mins after meds, and he is happy and not whiny and most important like right now he is singing and dancing around. so I get the best of both worlds a calm but happy kid. Daddy leaves for work and Binky is fine with it, No more tantrums! Binky is able to handle other things happening in his life, on Sunday we had a big rain storm, and he was fine going in the rain, (we have lost our umbrellas) and then we had to go to the grocery store and Binky was fine, he even got Inky a toy car. It was cute Inky was whining for a toy car and Binky goes," Inky here is a car for you." . a friend was late coming over today and instead of hear where is my friend over and over and over again, I only heard it asked once and he accepted the answer it was really great. i guess this is how the other half live.
Monday, September 10, 2012
Make your life for you.
I made my house to what serve my needs and my children's needs. I have my love seat in the kitchen, Why? I could never get Binky to sit and eat in the kitchen he always wanted to eat on the love seat, so I moved the sofa to the kitchen and now he eats in the kitchen. Funny but true. I no longer have a living room, I have a play room, there is a crash pit in my playroom where Binky likes to wrestle with Inky, and where Inky shows me new moves that were not in this years Olympic floor exercises. All the toys in bins with the exception of annoying toys, which are at this point, Thomas trains sets and any form of blocks. There were several tables in the room, but the coffee table had to go, Binky was using it to try to hang from the ceiling fan, there was a Thomas table, which had to go because Inky was using it as a trampoline, which is funny because we have a trampoline, which is near one of the windows which the kids like to look out into our backyard and see the funny birds and squirrels. The dream is to make it a complete sensory rooms, like I see at Binky's OT place. Binky has been very anxious lately and no matter what we do, we can seem to get him to stop throwing stuff, I recently gave away all of my wine glasses, I look funny using a plastic mickey mouse cup, but at least I won't have to worry about shattered glass anymore. I have packed away all of my coffee mugs, and plates and bowls are gone too. We use paper plates and bowls, for two reasons one, we are too busy to keep up the demands of dishes we even have a dish washer and two Binky would open the dishwasher and take plates and like at a Greek wedding would OPA! it all over the house, I have to say I was impressed the day the plate came flying over the banister and didn't break. I have tried all the baby proof locks but both Inky and Binky are too smart for those now, so I am stuck with just staying alert at all times. Our bedroom has the DVR and if I am nice, which is most of the time, I love hanging out with the kiddos we watch some Disney Channel show, before bed. There is no rule you have to have a sofa in the living room, make your life for you, some make think you have lost your mind, and others will be like "why didn't I think of that?"
Saturday, September 8, 2012
Autism is not that hard. I can't believe I just wrote that.
Here is an update for Binky's sleeping, We are still having a lot of problems with Binky being very anxious and very hyper. We went to the Nero, I call him Dr. Good. Dr Good, didn't see any problem with cutting out all sugar to make Binky not so anxious, and we are doing an increase in the Triliptal. If this round of increase doesn't work then we are going to try to something different. I like what has been happening with the Triliptal and I am hoping to keep Binky on it for a while. The most interesting thing that happened was in the waiting room, Hubby is with Inky and Binky as they walk up and down the hall, they love walking up and down halls. I am talking to a mom, her daughter has ADHD, and needs Dr Good's help getting her to sleep. We started talking about our kids,and for me, as I have a blog about my kids, I don't mind sharing, I am an open book. She asked about Binky and I said he has autism. Then she asked "Is it hard to deal with the Autism?" I was really surprised by my answer, "NO, you adapt. It was hard at first but then your figure things out, and it gets easier." I can't believe I am at that place, for so long, I wanted to tell the world, This is sooo hard, you can not understand how hard this life is, and all the things, you have to do, to get by day to day. Now, its hard, some days. If I can get Binky's anxiety down, I would be golden. I have figured out how to deal with Binky, on a day to day I know what he likes, and what he eats, and watches on television. Now, that I am able to get some sleep it is really, been easier to deal with Binky.
Inky is another story, I still am working on dealing with one Nero typical and one with Autism. Inky, will ask for something and then I get it for him and he is like NO! Binky had so many sensory issues, when it came to potty training, Inky just tells me NO! I got one down another one to go. I guess it does get easier, Who knew!
Inky is another story, I still am working on dealing with one Nero typical and one with Autism. Inky, will ask for something and then I get it for him and he is like NO! Binky had so many sensory issues, when it came to potty training, Inky just tells me NO! I got one down another one to go. I guess it does get easier, Who knew!
Tuesday, September 4, 2012
Meds are failing and sleep is becoming a dream.
Binky doesn't sleep, never really has, it has been an on going problem, and we tried several different meds, and all of them had failed. I found my childhood Nero and was able to bounce some ideas off of him, and we decided we were going to look for a Nero in my area to do a full Nero work up on Binky, to find out what was going on in his head. When I got to the Nero here, I was very happy with what was happening and he said many of the same things my childhood Nero said, and we decided on Triliptal and trazadone and for all of summer I got some sleep and Binky got sleep and life was good, but about two weeks ago things started to change and I figured when school started and we were on a normal everyday schedule things would be OK, but now I don't think so, For the past two nights Binky is waking up and coming into our bed or he is staying up. I have fear that these meds will stop working and I don't want them to, they have been so helpful to Binky and I am hoping that this is just a need for an increase. Binky used to be so sweet and now he is a terror, major tantrums and throwing things. It has gotten so bad, We are only using plastic plates and cups and paper plates. I even gave away my wine glasses, nothing that is breakable is safe in this house for right now. Thursday is when we see the good doc and I will update then.
Saturday, September 1, 2012
Happy about meltdowns! :)
I know you read it right, I am happy about Binky meltdowns, you see Binky didn't sleep very well for the last couple of years and he would nap and stay up all night and it was soo hard for the family but mostly me because hubby had to go to work so it was my job to stay up, beside I am a hoot owl so it was a wonderful excuse to stay up. I would tell Binky's ABA that I was having all these issues with meltdowns, but then with the ABA Binky was fine, Yes it was like that WB cartoon with the singing frog, only the guy would see it and no one else, Everyone who met Binky was like he is soo sweet and we just love him he is the perfect student. Well the jig is up, Binky is having meltdowns for everyone to see, and yes I am happy about it. Why? We can't solve what is causing the meltdowns and tantrums if we don't see them, sure I can tell the ABA but until yesterday I swear she thought I was making the stuff up. Yesterday lets talk about that, so we go to a mass retailers, it doesn't matter which one, during the car ride, Binky listed all of them because they all have TOYS. We get to the store and Binky loses it, we didn't even tell him he couldn't have a toy, he just knew and was mad as hell. Started running away and screaming, and kicking and slapping both the ABA and hubby. It took most of the two hour session to calm him down, Inky and I went in to get Binky's meds and some new bath toys for Inky. Inky and I got some popcorn and a blue icee, and Inky smiled at people as they would walk by. When the session was over, Binky was playing Angry birds on the ipod and ok, as long as he didn't go back into the store, the ABA is floored by what has happened, she has never seen this at all, and it going to consult her boss, and come up with a new game plan. He had another meltdown today and some of my things, (mostly crystals cats I have collected for years) took the brunt of it, but while it is said that my kitties are in the trash can. I am hopeful that we can finally get to the bottom of this and end these meltdowns once and for all.
Wednesday, August 29, 2012
No New School!
well school has started over here and let me tell you it is nice to only have one child to mess with, Inky is very sweet since Binky has gone to school Inky just wants to sit on the couch with me and snuggle. Poor Binky, Poor Binky. Binky everyday for all of summer has asked me "No New School" (we transferred to a charter school for kids with Autism last year but to Binky it is still New School) and everyday we would tell him No New School its summer, three months of this but then summer ended and the first day was full of screaming and crying. I walked him in on his first day and he had a death grip on my arm and as we approached the class, the panic of what was happening set in, but then the teacher came an greeted him and asked him to put his lunch away and hang up his backpack. She asked him to sit at the table and he grabbed my arm and made me come with him to the table, I sat down with him for a few minutes and then, I walked to the other side of the room, and then I just left. It may seem cold to leave you child but it is was the less painful way, I was told he cried a little and then was fine in about a minute. Now, I hear in the mornings "NO NEW SCHOOL", when he comes back from school "NO NEW SCHOOL",when he is getting ready for bed "NO NEW SCHOOL" I guess this is what I will have to hear from now on, Thank goodness for Monday so I can tell him, No School today.
Saturday, August 25, 2012
All Hell breaks loose on Monday!
I will make this short and sweet, for today was a very hard day, The reason for the title, All hell breaks loose, because Binky can read a few words and School is one of them, so today was the last day of summer, and while it would have been nice to go to the beach, speech and OT are the same thing? LOL. We decided to go to Morgan's Wonderland, I will just say this about Morgan's wonderland, if you have an opportunity to go. Just go, Don't worry about the cost, just go. You will thank me later. Anywhoo, it was the only place where both Inky and Binky can be happy, but Binky threw me a curve ball, he has been sleeping so good, (which is bad for me because I love a quiet house and will stay up way tooo late) but Friday night he went to bed at 8:30pm, and I was so happy until he woke up at 3:30am, and what the hell am I supposed to do now, so I did what any good mommy does, I piss and moan and take it up the tale pipe, I stayed up to I think 6:30am, and then I got up at 8:00am to go to Morgan's. I was so tired I couldn't stand it anymore. I kept on walking and doing other things, I went to the swings and the water features and the indoor sensory area. I made it from 9:30am to 1:00pm, and a very mad Binky did not want to go home, but we made it home where he went to sleep a few hours later and a bomb could have gone off and Binky would not wake up, so you would think oh he's awake now, NO! he's asleep! Crazy, I don't know for how long but I am going to go get a bite to eat and a nap, in case it is another 3:30am wake up call. Monday can not come soon enough, so enjoy your all hell breaks loose, on Monday, I know I will.
Wednesday, August 22, 2012
The hard days is what sucks the most.
Not much to blog about today, I forgot to hold back the sugar on Binky and a major tantrum at a pizza place, he even threw one of those mini blowing balls at me. Now he is still awake, but I got hubby and Inky to sleep so that is good. Binky is stacking some blocks so that is good for his OT but all and all it is one of those days that you will forget when everything is said and done. Tomorrow is our last day of vacation and I don't really know what to do, it is so hard because will Inky be good will Binky be good. Heat is down but not out. I have the vision of doing something fun but then I have a day like today and it makes me a little gun shy. School starts on Monday and I still have to get the house ready. So time to stop blogging. Remember all the moms and dads out there, it is supposed to get better just not perfect.
Tuesday, August 21, 2012
Share please! NO! OK then I will get you both one.
OH the joy of two boys, they are three years apart but with Binky's developmental delays, it make it like I have twins, all the fun and none of the support, so they like all the same toys and while Inky prefers cars, and Binky like airplanes and helicopters, it is a battle when the greatest toy of all happens, THE NEW TOY!!!! That's right the new toy has made its way, Nothing in the world exists, only the new toy and it doesn't matter if there is other new toys but if there is only ONE new toy then that is the focus. Today I order from Amazon a cute little Aircraft carrier, it looked like the picture to be an airport but it serves the purpose of the house, a place for airplanes and helicopters to take off and land, I got one for each boys because I knew they would want one, and then for Inky I got him his own airplane a simple 737 that was yellow, and I only got one, Why?! because thanks to birthdays grandma and me, Binky owns most of the small die cast helicopters and airplanes out there, plus he got a toy today for being a good boy at the haircut place, (today toy of choice a small Blue Angel for you airplanes nuts it is F-14 Tom Cat) so I thought I was safe to give Inky the plane, Binky had a F-16 on an aircraft carrier I just waiting for Maverick to buzz the tower, but alas no Binky has to have the NEW TOY! so I told him OK but then Inky get the Blue Angel, so Binky was like NO! here you go Inky! and order is restored for about 5 mins and the on and off through out the night we are playing the game of give it back to Inky over and over and over again until now, it is almost bedtime, and Binky is upstairs playing with something different while Daddy gives Inky a bath. This New Toy will go away soon, but until then I will hide anything a mad kid can throw at me.
Monday, August 20, 2012
Coupons, Helicopters and Cars Oh MY!
OK so my vision is to be on Extreme Couponing and have my total be $5.00. The reality is my store doesn't double and I have to take both kids to the store with me. So we start of at the Whataburger, get the boys some bribes to get us through the store, then we go shopping, I stick to my list this time (not completely but come on, there was some neat stuff to get) and we were out I would say in 30 mins. The boys were good they ate their food, but Binky has this training through his ABA that if he is good he gets a toy, so over to the toy section we go, try to talk him into the cheap party favors but he would have none of that so now we are in the aisle of cars helicopter and airplanes, Pixar is smiling at us, along with $8.00 set of helicopter and planes, which Binky is fixed on getting, I tell him No he can get a little toy and even show him some nice fighter jets but he politely says "no thank you" and then on the top rack is a shiny yellow single helicopter for only $2.00 and I say "hey how about this?" he drops the set and takes the helicopter, and is so happy he does a little dance, and then we are getting ready to leave the aisle when Binky says" Can I get Inky a car?" Well sure you can, and yes my heart just swelled a little bit, and he goes to the cars and says "I got Inky a silver car" and then gave the car to Inky and said "here is your toy inky" We gave Binky a big hug and told him he was a good big brother.
Vacation to us.
oh summer is coming to an end and let me tell you I am soooo happy. I love my son but I need him to go away so I can get some stuff done. This week hubby took the week off and have we gone any where NO!!! I like it that way too. Going on vacation with a young child and another one with Autism, well that is really hard, for us, For you I'm sure it is a good time but for us, it consists of no sleeping on any one's part and eating a lot of Mc Donalds. So when we have a vacation we stay here, The boys like parks and zoos and pools and such but they need their home at the end of the day and quite frankly so do I. It is nice having the hubby home, he is upstairs playing with the boys while I work on my coupons, (OK I am typing my blog but shh don't tell him that) A vacation to me is going to the bathroom without someone banging on the door, asking me to please open. The boys even guilt me by saying mommy we need a hug but they can't ask for a hug if daddy is chasing them through the house, and they are laughing, well back to coupons.
Sunday, August 19, 2012
The Thrid Otter Box
Oh the joy of modern technology, both of the boys have an Ipod touch, Binky's was a gift from a friend, I really am so grateful to this friend, because Binky cracked the screen of the first Ipod touch, so bad I was afraid it wouldn't work, but alas it came back to life and became Inky's. To protect the poor Ipods from sticky hands and liquid and the throwing across the room and down the stairs,and flying over the banister. We put otter box on the Ipod, they work great for a little while, I don't think there is anything that can handle the sheer force of Binky and Inky pounding and throwing. This is the third one we have had to get and I am so glad. This is what makes me excited finding and re buying the things that make my life easier, The new otter box is a lovely aqua blue so I am able to find it among the clutter of the house. I think black should be banned as a color choice, when you drop something having to find something in black is near impossible to find. I always say when I am ruler of the world, I am going to ban black remotes, I mean the fall under the bed and I am at a lost of many times to find them, and I always need to find them in a hurry because a certain Binky can't wait for it and is screaming in the background for me to turn on his show. I was worried that Binky wouldn't like the blue otter box, but he has taken quite a shine to it. He now asks for blue Ipod. I will give a shout out to pawpaw, who donated this round of Otter boxes.
Welcome to my new blog.
When I first made up my blog, I had visions of bringing information and understanding to the masses. Then I was given my life and I laugh at the possibility of having even one free moment to myself. I am making a new blog, one that really shows what my life is like. If you are looking for a proper blog and well edited, and everything all nice and sweet, well sorry to disappoint you but you are here. This is going to be an honest account of the adventures of Inky and Binky. They are crazy and fun and one of them (Binky) has autism, while Inky does not. If you are tired and can't believe your life with Autism is so crazy then this is the blog for you.
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