Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Saturday, March 2, 2013

NO! I don't want to do a visual schedule and you can't make me.

FINE! I'll do it but I am not going to be happy about it. What you thought it was Binky talking? No its mommy, there is so much work to do on these. Do you know how hard it is to schedule your family's whole life and then I have to find a picture of the certain activity. I have broken down the days

Binky's day:
Weekday with school:
Wake up
Open Shade of window
get dressed
take meds
Hug mama
Eat breakfast
put on coat
get backpack
get in car
go to school
Speech and OT on Monday

After school
get home
take off shoes
change clothes
take meds
play time
ABA on Wed and Friday
homework
dinner
bath
brush teeth
meds
bed

Weekend
get up
eat breakfast
go outside
snack/lunch
ABA on Saturday
playtime
workbook
playtime
dinner
bath
brush teeth
meds
bed.

Now which visual schedule do I use?!






All this makes my head spin, and the I have to get a app called iprompt. It is supposed to do wonderful things and I can put it on his ipod and he will always have it.  I know it is necessary, he just doesn't understand what is happening. This summer everyday he said "No School!" and EVERYDAY we told him "No Binky it's summer so there is no school." he would be like ok and go and play on his ipod. For three months this went on, I have learned a valuable lesson just because they can talk doesn't mean they understand. so on I go to find the clip art and the design I need, oh and there are a lot of pictures for free but if you want it to look really nice and professional which is important to Binky because he like consistency, you have to use a professional program that cost a lot of money. ok no more using escape behavior to avoid doing the task.

Saturday, September 29, 2012

Autism proof decor.

When I first got married the walls were covered in frames, and posters and prints, the bookcase had books and the coffee table had magazines. The kitchen had glasses and dishes. There were glass bottles in the fridge. There were pretty toothbrush holders and soap dishes in the bathroom, also fancy towels with pretty designs.
 ITS ALL GONE NOW!
What hasn't been broken or torn to shreds, has been packed away in a fashion that would make a refugee's head spin, my usual package to pack stuff up in a hurry, Diaper boxes, my closets look like a display for Huggies.

When you first have children you go into survival mode: Eat, sleep, go to work, pay the bills, run only the things you need errands. throw in a few fun times with friends and hubby and that has been our life for a while, with new diagnosis and Inky's birth, I felt like our survival mode lasted longer than it should.

I am starting to want to do things to my house, but I have a different vision, instead of a living room, I want a sensory room for Binky, I think it would help him stay calm. In the kitchen there is nothing Binky can break so I am able to relax a bit. Last night Binky got mad and swept off things in the kitchen and I didn't flinch, nothing we own now can break. or if it does break I can replace it cheaply.

I want to make Binky's room something nice but also something that wasn't going to blow up in my face if he tore it up in a meltdown, so I did some research and got some ideas and today I went to the store, I got some poster tape and self laminate pages and a great site that lets me legally print pictures of helicopter and BOOM! Hard plastic sheets of paper stuck on a wall with cheap poster tape, and it cost me about $14. for 10 pictures. I put Five up for now, and I am going to wait to see what I will need to do next.

 I should rewind and tell you what started this episode of design star started. I wrote to Bell Helicopter and told them about Binky, and his love of Bell Helicopters, I even sent them a picture of Binky with a Bell Helicopter and the Fine people of Bell Helicopter sent us a lovely gift package and in it was a large poster of Binky's favorite helicopter the V-22 Osprey, or as Binky calls it Airplane Helicopter, he says it like you would say "his name is John Smith." It was so nice and I wanted to frame it but frames take time(which I have none) and cost money ( which I have some but I need it for other thing) and in a pile of taken down art work I found a large print, and suddenly I realized it was near the same size as the Osprey poster!

 so now this wonderful poster that had been rolled away was out in the open and I wanted to put it in Binky's room and it looked great, but now I realize that at age 7 Binky need a more grown up/kid friendly room.  I looked into wall decals and poster which should be in this week and with the addition of the laminated photos,  the room is coming together wonderfully, Binky's keeps all of this airplanes and helicopter in his room so they blend right into the decor. I figured out how to have a nice home and still keep Binky safe.

Saturday, September 8, 2012

Autism is not that hard. I can't believe I just wrote that.

Here is an update for Binky's sleeping, We are still having a lot of problems with Binky being very anxious and very hyper. We went to the Nero, I call him Dr. Good. Dr Good, didn't see any problem with cutting out all sugar to make Binky not so anxious, and we are doing an increase in the Triliptal. If this round of increase doesn't work then we are going to try to something different. I like what has been happening with the Triliptal and I am hoping to keep Binky on it for a while. The most interesting thing that happened was in the waiting room, Hubby is with Inky and Binky as they walk up and down the hall, they love walking up and down halls. I am talking to a mom, her daughter has ADHD, and needs Dr Good's help getting her to sleep. We started talking about our kids,and for me, as I have a blog about my kids, I don't mind sharing, I am an open book. She asked about Binky and I said he has autism. Then she asked "Is it hard to deal with the Autism?" I was really surprised by my answer, "NO, you adapt.  It was hard at first but then your figure things out, and it gets easier." I can't believe I am at that place, for so long, I wanted to tell the world, This is sooo hard, you can not understand how hard this life is, and all the things, you have to do, to get by day to day. Now, its hard, some days. If I can get Binky's anxiety down, I would be golden. I have figured out how to deal with Binky, on a day to day I know what he likes, and what he eats, and watches on television. Now, that I am able to get some sleep it is really, been easier to deal with Binky.
 Inky is another story, I still am working on dealing with one Nero typical and one with Autism. Inky, will ask for something and then I get it for him and he is like NO! Binky had so many sensory issues, when it came to potty training, Inky just tells me NO! I got one down another one to go. I guess it does get easier, Who knew!

Wednesday, August 22, 2012

The hard days is what sucks the most.

Not much to blog about today, I forgot to hold back the sugar on Binky and a major tantrum at a pizza place, he even threw one of those mini blowing balls at me. Now he is still awake, but I got hubby and Inky to sleep so that is good. Binky is stacking some blocks so that is good for his OT but all and all it is one of those days that you will forget when everything is said and done. Tomorrow is our last day of vacation and I don't really know what to do, it is so hard because will Inky be good will Binky be good. Heat is down but not out. I have the vision of doing something fun but then I have a day like today and it makes me a little gun shy. School starts on Monday and I still have to get the house ready. So time to stop blogging. Remember all the moms and dads out there, it is supposed to get better just not perfect.

Monday, August 20, 2012

Vacation to us.

oh summer is coming to an end and let me tell you I am soooo happy. I love my son but I need him to go away so I can get some stuff done. This week hubby took the week off and have we gone any where NO!!! I like it that way too. Going on vacation with a young child and another one with Autism, well that is really hard, for us, For you I'm sure it is a good time but for us, it consists of no sleeping on any one's part and eating a lot of Mc Donalds. So when we have a vacation we stay here, The boys like parks and zoos and pools and such but they need their home at the end of the day and quite frankly so do I. It is nice having the hubby home, he is upstairs playing with the boys while I work on my coupons, (OK I am typing my blog but shh don't tell him that) A vacation to me is going to the bathroom without someone banging on the door, asking me to please open. The boys even guilt me by saying mommy we need a hug but they can't ask for a hug if daddy is chasing them through the house, and they are laughing, well back to coupons.