Saturday, September 8, 2012

Autism is not that hard. I can't believe I just wrote that.

Here is an update for Binky's sleeping, We are still having a lot of problems with Binky being very anxious and very hyper. We went to the Nero, I call him Dr. Good. Dr Good, didn't see any problem with cutting out all sugar to make Binky not so anxious, and we are doing an increase in the Triliptal. If this round of increase doesn't work then we are going to try to something different. I like what has been happening with the Triliptal and I am hoping to keep Binky on it for a while. The most interesting thing that happened was in the waiting room, Hubby is with Inky and Binky as they walk up and down the hall, they love walking up and down halls. I am talking to a mom, her daughter has ADHD, and needs Dr Good's help getting her to sleep. We started talking about our kids,and for me, as I have a blog about my kids, I don't mind sharing, I am an open book. She asked about Binky and I said he has autism. Then she asked "Is it hard to deal with the Autism?" I was really surprised by my answer, "NO, you adapt.  It was hard at first but then your figure things out, and it gets easier." I can't believe I am at that place, for so long, I wanted to tell the world, This is sooo hard, you can not understand how hard this life is, and all the things, you have to do, to get by day to day. Now, its hard, some days. If I can get Binky's anxiety down, I would be golden. I have figured out how to deal with Binky, on a day to day I know what he likes, and what he eats, and watches on television. Now, that I am able to get some sleep it is really, been easier to deal with Binky.
 Inky is another story, I still am working on dealing with one Nero typical and one with Autism. Inky, will ask for something and then I get it for him and he is like NO! Binky had so many sensory issues, when it came to potty training, Inky just tells me NO! I got one down another one to go. I guess it does get easier, Who knew!

2 comments:

  1. In many ways, Max is my easiest. I understand him the best. But in other ways, Thomas is my easiest. And then, so is Rachel my easiest. She is my most compliant, most helpful. I guess it really depends on the day.

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  2. I can relate....my oldest, Kevin has Duchenne Muscular Dystrophy(he's 20), Joey is 18 neuro-typical and Dusty is 5 and has Autism, possibly Duchenne's.....they all take th9ier turns being the hardest and the easiest....

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