Monday, November 26, 2012

In need of another vacation

All and All Thanksgiving vacation was wonderful, Inky and Binky played with their toys and messed up the house and there was so much laughter, I would just start laughing. Binky for the first few days was down right lethargic, I was concerned he might be sick but he bounced right back for the Thanksgiving. He was very excited about Grandma and PaPa coming into town, and I thought we were going to have a full blown tantrum over not serving Thanksgiving on Wed, but we got Binky to understand that Thanksgiving was on Thursday. We watched Charlie Brown's Thanksgiving over and over again. Binky ate turkey and stuffing, and some pumpkin bread which I called pumpkin cake. Inky ate for the first time fruit salad,and later that night had gas so bad I had to do those baby bicycle moves to get the gas out. Binky was upset tonight because we had to return to reality and do some homework, this is the first time, he didn't say "no new school when he woke up" he loved being home and we even cancelled his therapies for the week. I'm thinking that maybe we need to shut things down for a while and get some rest. Only 4 more weeks until winter break.

Sunday, November 18, 2012

Short but sweet.

They say that people with Autism need consistency in their lives, and when there are changes to be supportive. In real terms, you need to do the same thing everyday and if something is going to change you must prepare for all hell to break loose. I am making this a short and sweet post, because the grandparents are coming into town, and I have to make a Thanksgiving dinner(oh that's not a complaint, I love to cook, it is hard to do with two little kiddos running around) but this week I will have three people to help me wrangle the little cute monsters, its not enough but the national guard was busy this weekend. I am so tired, I have done more loads of laundry then I care to count, every room has been clean and re clean, and things that were clean are now dirty again, but I am making progress, the last room is the living room, or as I call it the PLAYROOM (cue ominous music) Yes, the playroom, where toys are not taken out of their boxes, NO they're dumped out and throw about and taken to different room, and then just left there, I try to keep it from getting too bad but I swear Inky and Binky just look at me with a yeah right lady I don't know what you have been smoking but I am going to go over here now. Binky is not really the problem, he puts his stuff back and helps in ways that work for him, Inky is the trouble, I never got to experience this before with Binky so this is what 3 almost 4 is like, he reminds of the Caterpillar room in Toy Story 3, Inky plays with his toys long and hard. I am sure at the end of the night as I am laying in my bed too tired to even move, the toys are down stairs checking to make sure everyone has survived the day.
This is going to be a good week, every week I hear NO new school, no new school, and this week no school, he is going to get some much needed rest, I think he is starting to get burned out, he has been showing all the signs but our hours for Speech and OT are almost out and we are going to do an increase in hours after the new year for ABA, so this will be a nice few months for Binky to relax and watch his Ipod and make some fun crafts. The meds are working again with a little bit of tweaking and it seems to be going good. Inky's meds are working too, he even likes to take them so its nice.
Well this is longer than I expected but if you ever meet me, I love to talk, that's because I hang around little kids all day and I would like to talk about something else, than Play doh, ipod, pink panther, and Disney Channel.

I wish you all out there A Happy Thanksgiving. or as Binky would say Happy Turkey Day.

Sunday, November 11, 2012

Dr. Good Update.

Well, it was time for Binky's checkup with Dr. Good. We are on Triliptal, and trazadone, and another which I can't spell right now.  For the last two months it has been working really great, but the last week, Binky has started to wake up early and he has been taking longer to go to sleep. What Dr good calls sleep latency. We were having some issues, with tantrums, the nice thing about having regular ABA sessions is you can tell the difference between behavior or if it is something else that needs meds for.  We give Binky the Triliptal in the morning and at bedtime, but at 3pm after school he started having mega tantrums, I was doing everything I was supposed to with the ABA side but I was having major trouble. Nothing was making Binky happy and then he would be OK in a few hours but from 3-5pm nightmare. Then we would give him his evening meds and he would go off to sleep. I love Dr. Good, he listen to all the problems we are having and he doesn't blame me, he believes me. He is going to do a small increase in Binky's Triliptal but he is going to give Binky some at 3pm and it has been great, I gave Binky a dose when he was grumpy at 4pm after the Dr. Good appointment. Binky wanted a hamburger and dinner wasn't until an hour later, Hubby and I had a date night that same night, one shot, of Binky's triliptal and Binky was nice again. We left him at our monthly babysitter service and Binky was great, he told us good bye and to have fun.

Hubby and I celebrated our 9th wedding anniversary. We have been together for 11 years, and this man drives me crazy but I just love him, I mean true love, the kind that you just can't live without. I know we are meant to be together forever.  We were supposed to have a nice planned out date. HAHAHAHA YEAH RIGHT! what dope are you smoking. Plans are for people who don't have kids or autism in their life.  We just went to Saltgrass steakhouse, and I got to eat a very large steak which is my favorite we also ordered a cake that we are still working on, it is  the size of a small tugboat.

and Finally, I would like to introduce you all to Dr. Good's newest patient: INKY! Yes, Inky is about to turn 4 and he still stays up all night, it doesn't matter what time he goes to bed, or gets up he still stays up until 1am, in the process he destroys his room. so after our appointment with Dr Good, I asked what age do I need to worry about Inky. Dr Good, asked all the questions, about how Inky sleeps, and what we have done to try to get inky to sleep. but alas nothing as worked. So then he said Yes, I need to start seeing Inky and gave us Clondine, which was the first drug we started on with Binky, but with Inky he just goes to sleep. and he wakes up happy in the morning and it is a great. The last two night Inky has been asleep by 9:30pm.

Saturday, November 3, 2012

30 days of Thankful Inky and Binky Style

I don't have to the time or the energy to do these 30 days of Thankful out there, doesn't mean I am not thankful just means, I had to clean the floor four times today and had three tantrums to deal with.
So here is all my 30 days of Thankful

1. Thankful for my kids grandparents, they are very great to both my husband and children.
2. Thankful for my husband, he loves our boys and me.
3. Thankful for Disney channel, my kids love the shows and Inky is learning things from Disney Junior it is wonderful to see him talking to Mickey.
4. Thankful for my husband's job, he has a good one, and he loves what he does.
5 Thankful for my Autism Support group. MoCAA, It has been a life saver.
6. Thankful for my friends, I have some of the best in the world.
7. Thankful for an Ipod touch, make me and the kids happy.
8. Thankful for our wonderful house, it is warm in winter and cool in the summer.
9. Thankful for Morgan's Wonderland, it is one of the few places Binky can go and be himself
10. thankful for a season pass for Sea World. It's a wonderful place, that Binky comes alive
11. Thankful for my blog a place where I can be myself and express myself
12. Thankful for Binky's ABA, I would be lost without them
13. Thankful for Binky's Speech Therapist, she has been doing such a good job and made wonderful progress with him
14, Thankful for Binky's OT, He has really helped Binky and is always coming up with ideas that take Binky to the next level.
15. Thankful for my very understanding neighbor, she just understand my family and is so patient with my kids.
16. Thankful for fruit snacks, it make Inky so happy.
17. Thankful for coffee, some days its the only thing that keeps me going
18. Thankful for Dr. Good a wonderful Nero that helps Binky sleep 10-12 hrs a day
19. Thankful for Binky's charter school. A Special school for Autism, Binky has everything he needs.
20. Thankful for south Texas weather, we have very few cold days, it is wonderful
21. Thankful for parks, there are so many wonderful parks near my house for the boys to play in
22. Thankful for play doh, the boys fav toy and creates so much fun
23. Thankful for books, I love to read and my boys love to read
24.Thankful for my neighbor's cat, she lets my Inky play with her
25.Thankful for helicopters, Binky comes alive, when he is around them
26.Thankful for my cell phone, it is my lifeline to grown up talk
27.Thankful for bedtime, and a little me time
28.Thankful for date nights, hubby and I need to reconnect more often
29.I am most thankful for these wonderful boys, they make life worth living and bring joy and craziness to my life everyday.
30. I am thankful for Autism, without I would never know how strong my family could become.