I know it's been awhile since my last blog, so much to talk about but I can't talk about it because, I'm tired. Why am I tired because inky has developed a sleep disorder the same one that has plagued. Binky, so what am I to do well everything. Right now I'm sitting in inky's room where we are currently having the battle over the iPods . I won! I don't mind hearing advice, on sleeping its just I've done it all. Warm baths, Epsom salt, melatonin no electronics, cold room, dim lights. He just doesn't go to sleep. For some reason if I leave the room he wakes up and freaks out but if I stay in the chair he stays asleep. Binky did the same thing. Oh I see dr good on Thursday for inky's first solo appointment. Hopefully we can figure out what is happening. See the head under all the blankets there's Inky!
This is about the wondeful adventures of Binky who has Autism and Inky who is his younger brother and mortal enemy and best friend. We happily live with Autism but we are not always happy. This life is a struggle and a blessing. I hope you will share in our adventure.
Sunday, March 31, 2013
Saturday, March 2, 2013
NO! I don't want to do a visual schedule and you can't make me.
FINE! I'll do it but I am not going to be happy about it. What you thought it was Binky talking? No its mommy, there is so much work to do on these. Do you know how hard it is to schedule your family's whole life and then I have to find a picture of the certain activity. I have broken down the days
Binky's day:
Weekday with school:
Wake up
Open Shade of window
get dressed
take meds
Hug mama
Eat breakfast
put on coat
get backpack
get in car
go to school
Speech and OT on Monday
After school
get home
take off shoes
change clothes
take meds
play time
ABA on Wed and Friday
homework
dinner
bath
brush teeth
meds
bed
Weekend
get up
eat breakfast
go outside
snack/lunch
ABA on Saturday
playtime
workbook
playtime
dinner
bath
brush teeth
meds
bed.
Now which visual schedule do I use?!




All this makes my head spin, and the I have to get a app called iprompt. It is supposed to do wonderful things and I can put it on his ipod and he will always have it. I know it is necessary, he just doesn't understand what is happening. This summer everyday he said "No School!" and EVERYDAY we told him "No Binky it's summer so there is no school." he would be like ok and go and play on his ipod. For three months this went on, I have learned a valuable lesson just because they can talk doesn't mean they understand. so on I go to find the clip art and the design I need, oh and there are a lot of pictures for free but if you want it to look really nice and professional which is important to Binky because he like consistency, you have to use a professional program that cost a lot of money. ok no more using escape behavior to avoid doing the task.
Binky's day:
Weekday with school:
Wake up
Open Shade of window
get dressed
take meds
Hug mama
Eat breakfast
put on coat
get backpack
get in car
go to school
Speech and OT on Monday
After school
get home
take off shoes
change clothes
take meds
play time
ABA on Wed and Friday
homework
dinner
bath
brush teeth
meds
bed
Weekend
get up
eat breakfast
go outside
snack/lunch
ABA on Saturday
playtime
workbook
playtime
dinner
bath
brush teeth
meds
bed.
Now which visual schedule do I use?!
All this makes my head spin, and the I have to get a app called iprompt. It is supposed to do wonderful things and I can put it on his ipod and he will always have it. I know it is necessary, he just doesn't understand what is happening. This summer everyday he said "No School!" and EVERYDAY we told him "No Binky it's summer so there is no school." he would be like ok and go and play on his ipod. For three months this went on, I have learned a valuable lesson just because they can talk doesn't mean they understand. so on I go to find the clip art and the design I need, oh and there are a lot of pictures for free but if you want it to look really nice and professional which is important to Binky because he like consistency, you have to use a professional program that cost a lot of money. ok no more using escape behavior to avoid doing the task.
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